The Common Rule Canary in the Mine: How the Final Common Rule Presages A Need for a New Way to Protect Human Subject Privacy in the Genomic Age

Overview


Jennifer Geetter and Jiayan Chen wrote this bylined article on the Department of Health and Human Services effort to modernize the Federal Policy for the Protection of Human Subjects, also referred to as The Common Rule, which the authors wrote governs privacy and ethics for “the genomic character of the patient information relevant to clinical care and research.”